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Data justifies hefty drug price tag
Posted 9 December 2025 AM
CSL has got some new ammunition to support a premium price for its gene therapy when it negotiates with the government over funding.
MSAC supported public funding for haemophilia b gene therapy Hemgenix under the National Blood Agreement last month, but at a lower price than sought by CSL. Hemgenix is the world's second most expensive drug, sold overseas for around $5.3 million, but the Committee said the four-year follow-up data did not support the durability of the treatment over a lifetime.
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Posted 9 December 2025 AM
CSL has got some new ammunition to support a premium price for its gene therapy when it negotiates with the government over funding.
MSAC supported public funding for haemophilia b gene therapy Hemgenix under the National Blood Agreement last month, but at a lower price than sought by CSL. Hemgenix is the world's second most expensive drug, sold overseas for around $5.3 million, but the Committee said the four-year follow-up data did not support the durability of the treatment over a lifetime.
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