News

Rare disease renovation required

Posted 4 December 2025 AM

Alexion has thrown its weight behind a report on the state of rare disease treatment in Australia which has called for the establishment of an Office of Rare Disease (ORD) by the Commonwealth, along with seven other recommendations to improve treatment.

The report by the McKell Institute, A Rare Kind of Care: an agenda to deliver health equity for Australians living with a rare disease, was launched by the NSW Minister for Health, Ryan Park, on Wednesday, to address the issues faced by the eight per cent of Australians with a rare disease.

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